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Procedures for access by scientists to the study data and materials

The Generations Study welcomes enquiries from scientists about potential uses of the data and samples for research. The study is focused on breast cancer, but will also consider uses for other medical research if this does not detract from the prioritisation of breast cancer research. All such research is conditional on the strict need for confidentiality of individual participant’s data and samples. No individually identifiable data will be released to scientists outside the study team. Please reference our data protection and confidentiality policy here

Access to all data and biological samples from the study is controlled by a committee, which includes representatives of Breast Cancer Now and The Institute of Cancer Research. Given the limited and depletable nature of the samples, their use is particularly carefully controlled in order to optimise the informativeness of the Study in the long-term.

In order to obtain access to the Generations Study Materials, scientists should first submit a written request for access to the Principal Investigator.