Privacy and ethics

Privacy Statement

The Institute of Cancer Research (ICR) is committed to protecting your privacy. All information provided by participants and collected from them during the course of the study will be kept strictly confidential. The storage of personal contact details is necessary to enable the study team at the ICR, with appropriate ethics approval, to communicate with individual women who are taking part in the Generations Study.  

How do we (i.e. ICR employees, with appropriate ethics approval) collect information from this website?

What information do we collect?

The information collected is your name, postal address, telephone number and email address. By providing this information, you consent to its collection and use in accordance with the purposes below.

How do we use this information?

We will use the contact details you have entered on the website to provide you with the information you have requested about the study. The personal information you supply will only be available to the study team at the ICR, with appropriate ethics approval. In particular, it will not be supplied to, or be available to, other ICR employees or Breast Cancer Now, and will not be used to solicit donations by or on behalf of Breast Cancer Now or the ICR.

How do we protect personal information?

The personal information you enter can be accessed only by the staff at the ICR conducting the Generations Study. The ICR takes appropriate measures to ensure that the information is kept secure.

Will we disclose the information we collect from the website to outside parties?

No. The ICR will only disclose your information with your consent or if required to do so by law.

Will the information collected about me be kept confidential?

Yes, of course. All information collected about you during the course of the research will be treated in the strictest confidence, in accordance with the Data Protection Act, and kept under the supervision of Professor Swerdlow, who is a medical doctor. We will not pass on personal information to anyone outside the study, and no individually-identifiable information will be published. All individually-identifiable data will be destroyed at the end of the study.

How is the study ethically approved?

The study has been approved, under the procedures for national medical research studies, by the South-East Multi-Centre Research Ethics Committee.